Tuesday, November 11, 2008

Andrew, Luke, Jackson and I at the Pumpkin Patch

Addison's first Halloween!

Addison was in the hospital having surgery last year on Halloween. This was the first year she has gone trick-or-treating! Let me tell you how excited I was! The weather was wonderful and she looked beautiful as a ladybug! Here are a few pictures including ones from last year in the hospital!

This year at the Pumpkin Patch

Last year at this time!

This picture was taken last year (07) around Halloween. Look at the difference in how much she has grown and changed!

Sunday, November 2, 2008

Doctor Updates

Wow! It's been awhile since I have updated Addison's blog! Addison has been to many of her doctors lately so let's see if I give you some updates! The biggest question is when will they fix her cleft palate...since Addison has issues with her breathing and is still on oxygen at night the pulmonologist and plastic surgeon agree that waiting for awhile is best. Addison is taking advantage of the hole in her mouth and using it as an airway. Since her chin is somewhat pushed back this pushes her tongue back and has made her airways in her throat smaller. So for now we agree with the doctors and find waiting the best for Addison.

Addison has also seen her neurosurgeon and he said that there is now clear evidence to show that she actually has a tethered cord! This was good news. We are going back to see him in 9 months. We will just touch base and make sure that she is still having movement in her legs and no bowel issues (that's hard to determine since she isn't potty trained). We were glad to hear his news!

The developmental and GI doctors said she is growing wonderfully! She is moving to Pediasure soon and will have her diet altered to fit her calorie needs, etc. She is constantly rolling over, almost sitting up by herself and working on her leg bearing activities. She is advancing nicely!

We are looking at possible tubes near December. I think I can handle that! It is such a common surgery. I just hate to see her have surgery again! But then she will be able to hear her mother's lovely voice singing her ladybug songs!!!

Thursday, September 11, 2008

Birthday Pictures

Here are some birthday party pictures!

Tuesday, September 9, 2008

Random Updates

It has been awhile since I have updated news on Addison. Since I started the school year in August I haven't found the time to sit down and add news or pics. I might get excited and add too much today :) On August 30 Addison celebrated her first birthday! We went to Holiday World with my parents for Labor Day weekend. We had a great time. Addison bonded with my mom as we went on the roller coasters time and time again. She did very well considering the heat that weekend. On September 6th we had her birthday party and of course it was all about the ladybugs! We had a wonderful cake decorator...thanks aunt pam...make an awesome ladybug cake. She has been all smiles the last couple of days so she was in a great mood. I have tired to post a variety of pictures. Hopefully not too many...can there ever be too many pics of my beautiful daughter??

This past Monday Addison went to the pulmonologist for a follow up. She is breathing nicely. The oxygen at night is still needed until a sleep study is done to determine her o2 levels. On Friday she goes to see the G-tube nurse and Opthamology, Tuesday is the ENT, the following Monday is Plastics and Neurosurgery. Lots of stuff going on....

Wednesday, August 20, 2008


Addison went to her Orthopedics doctor for the first time yesterday. Awhile back we received some news that her forearms were not developed correctly. The x-rays showed dislocation around her elbows of both arms. The doctor said that she has 70% range of motion. She will probably not have to have surgery (which is very indepth and difficult) since she would not benefit from it. She goes back to orthopedics in February for more x-rays.

Saturday, August 16, 2008

Care for Addison

Many of you have been asking about who is watching Addison since I have gone back to work. Sean's employers have been very gracious in allowing Sean to work nights for a couple of weeks so he could stay home with Addison. It has worked out well for now. Starting in September Sean has to go back to days. Grandma Mary is going to watch Addison during the day for awhile. Addison's care is the most important thing right now so are taking each day one at a time! Here is a picture of Daddy leaving for work on his first night!

Tuesday, July 29, 2008

Back to work!

So... I returned back to work yesterday to teach Camp Kindergarten. It is so fun...however, I missed my baby girl so much. Addison stayed with Meemaw and had a blast. They practiced rolling over some more. She loves to sit in her big girl high chair and watch Meemaw fold all of Mommy's clothes....I love you Meemaw!

Thursday, July 24, 2008


Addison made it through her first Greensburg Baseball Tourney. She was even given the game ball. One sweet little guy who has a heart of gold for Addison decided that if the team won then Addison should get the game ball. They did in fact win and moved on to the Semi-finals only to get rained out! Addison loved her ball that the team/coaches signed. We will be getting a special baseball stand for the ball that will be kept in Addison's room. You can see how much she loves it...always licking the things she loves!

Here is a picture of her rolling over!


This afternoon Addison rolled over on her own! It was so cute. We have worked very hard in therapy on rolling over and sitting up. I truly thought that she was never going to be comfortable on her belly. It isn't her most favorite place however she finally got bored enough on her back that she decided to venture out!

We also found out the results of her xrays of her elbows. The nurse called and simply said "they are funky." Her ulna and radius are mishapen or under developed. They call this hypoplastic (I think that is the right word). She is being refered to Orthopedics. Just a small bump in the road. Sean said it is better to know now that later...he is so postive. He is our rock!

Tuesday, July 22, 2008

Addison went to the Neurosurgeon on Wednesday of last week. She is doing well and will the doctor again in a couple of months as well as her plastic surgeon (in anticipation of repairing her cleft palate).
Today we took Addi to the pediatrician. She has a slight weez and is on her nebulizer treatments 3 times a day.

Tuesday, July 15, 2008

Today Addison had a visit with her Developmental Doctors. If you can believe this...she is gaining too much weight. Here we have always been concerned about her growing and now she is growing too fast :) She had x-rays on her elbows to determine if they are tight or if they aren't developed properly. We also made an appt with an ENT for her ears/hearing. Yesterday we went and saw her pulmonologist. She is now on her oxygen at night only. She will have another sleep study later on to find out more about her sleep patterns and oxygen levels during sleepy time. Tomorrow we go to see Neurosurgery. We have had a busy week already.

Thursday, July 3, 2008