Wednesday, January 28, 2009


Here is what we did today on our snow day! We stayed in our PJs and played inside where is was warm and cozy!

Here are some fun photos from Austin's Cougar Classic!

Monday, January 19, 2009

Medical Update

Addison is doing pretty well. Right now she has been sick for about a week. She is very congested and tired. No major worries right now...just sick. She is still on her oxygen at night until we can get her through the RSV season and then we will reevaluate the o2 after a sleep study is done. That won't be until after April.
She just had tubes put in on December 2nd. Because her ear canals are so very tiny it took the Dr. over 2 hours for this procedure. He ended up getting a tube into her right ear. Her ears are looking good and we haven't had any problems yet. Her next step is to see the hearing aide clinic at Riley and have another hearing test.
There hasn't been any talk of fixing her cleft palate. She uses the hole in her mouth as an airway since her airways are so tiny. She needs that space until her chin, throat, etc grow a little more.
She is still being fed by her G-tube. She eats very small amounts of baby food but doesn't really like it! She does however put everything else in her mouth.
Right now we couldn't ask for things to be any better. She is growing and becoming more personable and fun!!! She is hilarious...and cute as a button!

Chrstmas 2008

We had a great Christmas. We had fun with the family and Addison stayed awake for Santa's visit! Santa brought Addison a great toy that she can use sitting down or standing up! Santa brought the boys a PING PONG table! What fun!!! Here are some more pictures for your enjoyment! We hope that all of you had a great holiday season and happy new year!

Christmas pics

Amanda Bannon takes the best pictures! She made us all look fabulous in our Christmas pictures! Here are just a couple that she took. Addison was so funny and happy that day! Hope you enjoy!