Wow! It's been awhile since I have updated Addison's blog! Addison has been to many of her doctors lately so let's see if I give you some updates! The biggest question is when will they fix her cleft palate...since Addison has issues with her breathing and is still on oxygen at night the pulmonologist and plastic surgeon agree that waiting for awhile is best. Addison is taking advantage of the hole in her mouth and using it as an airway. Since her chin is somewhat pushed back this pushes her tongue back and has made her airways in her throat smaller. So for now we agree with the doctors and find waiting the best for Addison.
Addison has also seen her neurosurgeon and he said that there is now clear evidence to show that she actually has a tethered cord! This was good news. We are going back to see him in 9 months. We will just touch base and make sure that she is still having movement in her legs and no bowel issues (that's hard to determine since she isn't potty trained). We were glad to hear his news!
The developmental and GI doctors said she is growing wonderfully! She is moving to Pediasure soon and will have her diet altered to fit her calorie needs, etc. She is constantly rolling over, almost sitting up by herself and working on her leg bearing activities. She is advancing nicely!
We are looking at possible tubes near December. I think I can handle that! It is such a common surgery. I just hate to see her have surgery again! But then she will be able to hear her mother's lovely voice singing her ladybug songs!!!
4 years ago