Addison Isabella Brown

2010-09-04T14:00:00.000-07:00

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Random Thoughts and Pics

2010-06-08T03:02:00.000-07:00

Addison had her cleft palate repaired on May 12. I was very nervous that morning as we drove to Riley Hospital. Addison has had so many respiratory issues that repairing this hole in her mouth, which was now being used as an airway, could cause her new breathing problems. I was so scared that she would have to be put back on oxygen and the monitor. If she were to come home with oxygen I would feel that we were taking steps backwards and not forwards. This surgery ended up going very well. She was a strong little trooper and everything went better than I could have ever hoped. She has since had 2 follow-up appointments and the doctors have given us wonderful news each time. She is healing nicely. Those words gave me reassurance that we had her palate fixed at the correct time. This was the last major surgery that we knew she would have done. Now, we feel that a small weight has been lifted from our shoulders. She is getting so big and so strong. She now weighs 24 pounds! I can't believe it. My baby is growing up...

CdLS Awareness Day at Nicholson Elementary

2010-05-09T06:12:00.001-07:00

March of Dimes

2010-04-24T14:52:00.000-07:00

Today Addison, Aunt Margee, and I walked in the March of Dimes walk at Wabash College. I had a blast! It was the first time that I had participated in a walk. I can't believe that I have not chosen to do this before. Our team raised over $1600.00 and my friends and family helped me raised $426.00! Thank you everyone! Here are some pictures. The Lil Miss P Team rocks!!! And Lil Miss Peyton was as cute as ever! I am blessed to have met Peyton's family and call them my friends. That's what March of Dimes is all about! I love you guys!

2010-03-27T05:30:00.000-07:00

I do enjoy when we have a round of good things happening! The Lord is with us everyday through challenges and triumphs and I just want to say how wonderful it feels to have him on my side.

What a beautiful little girl he has blessed into our family. I look at these precious pictures that my friend April took and it takes my breath away. The other day one of my small groups of kiddos that I work with everyday, had a conversation about what it means when something is "breathtakingly beautiful" and this is it! My darling Addison who takes my breath away at each step, each breath, each tear, and through each small goal she achieves.

We just got a call this week that Addison's bone conductive device is in. The state approved the BC1 and she will hopefully get them next week. I am getting nervous but feel relieved that she will be able to hear soon. We also got an email that we have been approved through the Family Improvement Fund for money to go to the CdLS Conference in June. Lots of good things happening!

2010-03-19T15:23:00.001-07:00

Addison had surgery on Tuesday for her clogged tear ducts. Surgery scares me a lot for Addison. She has had intabation problems in the past when she was lifelined to Riley. The doctors tried to tell me that Addison was difficult to intabate and that her anatomy in her throat was abnormal. They wanted to trach her so that if she had to be intabated in the future it wouldn't be a life or death situation. So from that day on I have been very nervous about taking Addison to surgery. On Tuesday the doctors reassured me that she would do great. On her last 2 procedures she was intabated without difficulty!!! I did not know that. The surgeon and the anesthesiologist were very thorough and made me feel very comfortable. They were amazing. So, Addison was wonderful and everything went according to plan. I was so excited to see her smile when she woke up. I am praying that she won't have drainage problems in the future.

On May 12, she will have her cleft palate repaired and her hand repaired where her two fingers are fused together. Her plastic surgeon will hopefully be able to separate these. I will be very nervous again praying that God watches over her and helps her heal.

She did get her Easter pictures taken and she about tore off a chick's wing!!! I was very frightened for the chick's life. So, needless to say, we gave her a fake chick instead! What a funny day that was...not for the chick...very traumatic!

The Latest Update

2010-02-27T12:12:00.000-08:00

Addison had been doing really well lately. She was in the hospital in January for a couple of days due to lack of weight gain. Now she is gaining weight and lovin' life. On March 16 she will be having her tear ducts probed at Riley. She has had very yucky eyes and it just won't go away. She dreads the morning ritual when the washcloth comes her way! It will be nice when she wakes up each morning and her eyes are actually opened. On March 8 she will be going to see the audiologist. We have been trying to get her BAHA hearing device since last year. The insurance has denied it twice so now we are trying the BC1. We will discuss those issues at our visit. Good news is that I do think her hearing has improved. May 12 is the tentative date for Addison's cleft palate and hand repair. I'm scared for her to go back and be put under for a surgery. I'm sure I will be a mess those days...surprise, surprise huh?

Pictures from the last couple of months

2010-02-24T19:19:00.000-08:00

The Best October EVER

2009-11-07T10:11:00.000-08:00

We had such a great month. We started off by having Sean's 40th birthday party and our Annual Pumpkin Carving Party where this year we "wigged-out!" Check out those fun wigs! We had a blast spending time with our friends and family. Then we went to the pumpkin patch with my sister and her family. Despite the frigid temp that day the kids had a great time. The evening was a tad warmer as Andrew, Sean and I headed to the Haunted Hayride/Headless Horseman at Conner Prairie. That was GREAT! We will definitely do that again next year. Then the night finally came that I wait for every year, Halloween. We had a terrifically frightful night trick or treating on Main Street. Again it was a cold night and the kids had a blast! Here are some fun pics of the month!

It's been a long time!!!

2009-10-15T09:01:00.000-07:00

Boy have we been busy! Again I can't believe that I haven't updated Addi's blog as often as I should. Austin is almost finished with his Freshman football. He did an awesome job as the Quarterback and I am so proud of him. Andrew's team came in 2nd at the Youth football tourney. He did an amazing job this year. And Addi, well, Addi has been super healthy and that is what we pray for each day. Her pulmonologist has taken her off her oxygen at night. Now that was a celebration! We are all excited about that, especially Addi!

We took a 4 day trip to the Big Apple! We went to see the Yankees and the Red Sox play. What a great trip. We ate hot dogs at Nathan's in Coney Island! YUMMY! What a great night. It was a very tiring trip but way too much fun! We hope to go back soon. The boys have found their love for the big city! I think they liked the subway the best!

So I have posted some recent pics of NYC and others...hope all of our followers and families of children with CdLS are doing great. I pray for you all daily and wish I had more time to read your blogs! Now that I have three jobs I am strung out pretty thin and hope someday to be down to one that allows me to spend MORE time with my sweet baby Addison!!!

2009-09-06T15:16:00.000-07:00

I can't believe that it has been since August that I have posted anything! We have all started school and it has been a whirl wind of events. Austin is the quarterback of his Freshman football team and Andrew is playing football on Saturday mornings. And in the middle of all of this Addison turned 2!

What a crazy two years. When I look back at pictures and think about how far we have come with Addison and her health it truly seems like a the last two years have lasted a lifetime. There were so many struggles and deep emotions that I have never felt before. I hope that I never have to feel them again. The thought that any day Addison's health could turn for the worse has slowly drifted to the back of my mind. It is still there. I can't say that it will ever go away now. But it isn't at the forefront of my thoughts each day. Addison is doing so well that sometimes I am afraid to tell people that in fear that I will jinx it all. You can tell from the pictures that I posted that she has been SUPER great! She is doing well and lovin' life with her two brothers. Everything revolves around Addison, but why shouldn't it, right?

2009-08-11T12:57:00.000-07:00

Well, time flies and the summer has once again passed by too quickly. I have really enjoyed my time at home this summer with Addison. School has started and I am back at work. I will not lie when I say that the tears are a-flowin'! I have missed her dearly the last few days. I have put pics up all over my classroom of her which makes it even harder :)

Austin is a freshman so that doesn't help ease my motherly anxieties. He is growing so fast and I just can't seem to keep up with the time. He is getting taller by the day! He is playing football again this year. He is the quarterback for the freshman team. When he was little he used to wish time to pass so he could be a big boy and play on the "big field." Well that time is here. I looked out onto the field the other day and I saw a young man wearing the Charger blue and orange that he just couldn't wait to wear. Where has the time gone? How do they grow so fast?

Andrew is feeling big time since he is a 5th grader and ruling the school! He is also playing football and keeping us busy with his activites. He is growing like a weed and I can't believe how big his feet are! I guess he will be tall like his dad!

I will put on some new pics as soon as I can! Addison's benefit is this weekend in Lafayette and I hope to have lots of good pics. Thanks to all of our great friends who have worked so hard to help our family! We love you guys, more than you know!

Hitting the Beach!

2009-07-09T06:57:00.001-07:00

Once again we went to Myrtle Beach with my parents! We had so much fun. Andrew loved the beach and Addison really enjoyed the wind blowing through her hair. She got excited about riding around in the golf cart. This year was fun but different. Austin had ball games and he decided not to go with us. He stayed with a friend for the week. I missed him very much. I know he was having fun at home with his friends but I did miss his humor and smile each day. I was very happy to see him when I got home.

Addison tried watermelon and made some funny faces as the juice squirted into her mouth! We were very sad to leave and can't wait to go back over Spring Break!

Addison Goes to Graceland

2009-06-22T11:49:00.001-07:00

Most of you know that I am one of the biggest Elvis fans with two rooms in my house dedicated to the King, I would have a shrine in every room but my kids absolutely refuse to let me! So, for our 10 year anniversary, Sean surprised me with a weekend trip to Memphis! We had such a wonderful time despite the high temps. We were sweating like pigs but still managed to pay our respects to the King of Rock n Roll. Addison did a great job of non stop touring as our trip was a quick one. We toured the masion as usual, wrote on the wall and ate BBQ on Beale. We also met two amazing women from London, Tracy and Valerie. If you ladies are reading this we hope you had a safe flight home with cooler temps greeting you when you arrived! We hope you keep in touch! Enjoy our pics b/c I had a blast taking them! We love you, Elvis!!!

2009-06-22T11:41:00.000-07:00

I even tried to scale the Graceland wall, however Andrew stopped me. He wasn't about to make the long trips to the Shelby County jail to see his mom!

More Memphis pics

2009-06-22T11:37:00.001-07:00

Spreading Awareness

2009-06-22T11:21:00.000-07:00

There's no better way to spread the word than by writing on Elvis' wall at Graceland!

2009-06-22T10:56:00.000-07:00

Addison likes apples! We tried apples last friday and she was actually opening her mouth and biting on the apple.

Eating is going great!

2009-06-11T07:42:00.000-07:00

Today we tried pears! She loves them.

The Biker Blood Runs Deep

2009-06-11T07:37:00.000-07:00

Sean finally got to ride his Harley somewhere! When he got back I took the opportunity to take some pics of Addi with her daddy.

The Joys of Eating

2009-06-09T08:23:00.000-07:00

Since Addison has a G-tube feeding has been a real concern for me and a scary one at that! Addison has a cleft palate which scares me to even think about trying to feed her. Is the food going down? Is it going up? Is it in her lungs? We were told by her doctors that just because she has a cleft palate doesn't mean she can't eat. Ok so this stresses me out. I want her to eventually enjoy our neighbors delicious fudge brownies as much as I do, but how do I go about all of this? Addison's OT and I were discussing the issue last night. We bought one of those mesh food feeders at Wal Mart and tried it this morning. Addison loves to chew on toys and enjoys sucking on a wet washcloth, like most kids do, YUK. Anyway...it worked! We put some banana in the mesh bag and away she went. She loved it. Maybe this food thing isn't so scary after all :)

Tag the Day for CdLS

2009-06-02T09:01:00.000-07:00

I can't believe it! We raised $1000.00 for the CdLS Foundation. I couldn't have done it without the help from all the people who donated and my friends who passed on the word. To those of you who came over and spent the day with me helping, you are a blessing. Thanks Ginny, B-Ray, Ponch, Jen, Jenny on the block, and Trisha. Also thanks to Mike for coming early in the morning to help Sean move tables. All those people who came shopping at our yard sale you guys are the best. We couldn't have done this without any of you! We hope to do this again next year.

2009-05-27T15:54:00.000-07:00

2009-05-27T15:43:00.000-07:00

About time!

2009-05-27T15:36:00.000-07:00

I think it is an understatement when I say it is about time I updated Addison's blog! Whew, have we been busy! Most of you know that on Saturday we are having our Tag the Day for CdLS yard sale. We have many donations and want to Thanks to everyone who have brought stuff over, called about helping , etc. You are guys are the BEST! Can't wait for it to be over, kind of tired of little round stickers :)

I will post pics after Saturday!

Andrew and Austin are now in the heart of Baseball Season with many games to come. Addison is fabulous at the games. She laughs and plays with her Meemaw and Papaw and give her brothers good luck kisses every now and then. I hope you enjoy the recent pics as much as I enjoy taking them. I have a camera attached at my hip, I swear. Austin is about sick of seeing it in his face! :)
Hugs and Kisses to all of our blogger friends. I can't wait to update myself on your blogs and see your beautiful children!

2009-04-16T14:37:00.000-07:00

Well, I had my heart broken today. As most of you who read this know, I teach and I work with children in the 2nd and 3rd grade. Today one of the little girls who I don't work with but love seeing each day, came into my classroom. She saw a picture of Addison, which are all over my room, and asked me who it was. I told her plain and simple and with lots of pride that she was my daughter. This is where the conversation got tense and awkward. She looked at me with raised eyebrows, rolled her eyes, and said, okay. Not just a plain ole okay...an okay with attitude, a slow okay with rudeness in the voice, an okay that said, I'm better than you, an okay that ultimately felt like daggers piercing my heart. If that wasn't enough the same child saw me after school and said quite loudly that she heard my daughter had only 4 fingers. Needless to say many tears were shed and are still being shed since that moment. I always new that someday I would encounter someone who would judge my daughter but I guess I was praying that I would be prepared.

Maybe my life's mission has now become to educate our youth concerning children with disabilities...

thanks for listening...

Myrtle Beach Spring Break

2009-04-16T14:22:00.001-07:00

Addison had a wonderful time at the beach. She loved the breeze blowing through her hair as we rode around in the golf cart. She went swimming and touched those toes to the sand for the first time. I'm not sure if she really enjoyed the pool but we will try again another time. She was all smiles at the beach though unlike last year. I can't wait to go back in July when it is warmer for her to enjoy the outdoors even more! oh, by the way...not sure why the one pic is sideways...but you get the idea, right?

Easter pics

2009-04-03T07:49:00.000-07:00

So the Easter pics weren't the experience I had anticipated. I shouldn't set myself up for the dream of a happy child, friendly furry animal, laughing parents, yada, yada, yada... This experience couldn't have been further from that dream I had created in my mind. Poor Addi was upset, hating the silky dress I made her wear, the wicker chair was rough on her legs...the only thing that did happen like my "dream photo shoot" was that Thumper was so cooperative we didn't even know he was there. What a perfect bunny!

We are heading to Myrtle Beach for spring break...hopefully I will have wonderful photos to share!

Happy St. Patrick's Day

2009-03-17T15:15:00.000-07:00

Happy St. Patty's Day, everyone! We had a great time watching Sugar Creek turn GREEN!

Watch Me Crawl/Scoot (I'm almost there!)

2009-03-15T14:13:00.000-07:00

Yeah! I got it!

Just Messin' Around

2009-03-15T14:02:00.000-07:00

Me and Austin

2009-03-15T13:57:00.001-07:00

I love my BIG brother!

Extra Valentine's Day Pictures

2009-03-15T13:52:00.000-07:00

Way too cute not to share!

Medical Update

2009-03-04T08:04:00.000-08:00

I apologize to those of you who visit Addi's site frequently. Not only have I been sick but so busy that I can't seem to get to the computer to put new pics and info on here! I know that you all know what I'm talking about :) So...here is what has been going on the last month. Addison's blood in her "poo" was nothing! Yahoo...a positive test result. You can't beat that. She has been sick lately but just congestion, cough and lots of snot! She is acting much better now.

Her poor babysitter has had a time with her family and keeping them healthy. She has been home battling the yukies! We miss her very much! Because she has the sickies at her house Addi's Papaw (my dad) has stepped up to the plate and has been the Nanny we all new he could be for the last 5 days! Go Papaw! He is having a wonderful time bonding with little Addi. I will have to say she adores her Papaw.

Pretty soon Addi will be having surgery on her tear ducts. They have been very clogged since she was born. I kept putting off this procedure since it was one more thing that Addison had to go through. I was hoping that she would out grow it like most kiddos do. But, no, she hasn't been lucky in that area. We are waiting on the call for that date.

Yesterday we went to see the Audiologist about her hearing. We are going to get the Baha sound processor. It is actually a very cool, little device! Here is the website if you are interested www.cochlear.com I'm excited about it. Still a little scary as is anything new and unfamiliar. I will admit I did some crying and a little self pity...but as my mom always says..."it could be worse." I am just happy that she will be able to hear!

So that is it for now...I promise I will do my best to put up new pics...also I love the comments everyone has been leaving. I will try harder to visit those sites regularly and add my comments. I'm so excited that moms of children with CdLS have found Addi's blog and visit! You all are in my thoughts and I get excited to hear from each of you!

Happy Valentine's Day

2009-02-15T14:47:00.001-08:00

Latest visit to Riley Children's Hospital

2009-02-04T12:18:00.000-08:00

On Thursday January 22, 2009 Addison was taken to Riley by the Riley transport team. She had been having some trouble breathing due to what we thought was congestion. After a couple days of the doctor's care they decided that Riley would be the better place for her. They took her to Riley and put her on oxygen for the ride. Once we got to Riley she stayed in the ER for what seemed like forever. They had to put in an IV and if you know anything about Addison you know that an IV doesn't come easy for her. They picked, poked, prodded and still no IV was going in. They finally decided to take her to her room. She ended up not ever needing the IV so that was a blessing. The doctors put her on some breathing treatments and oxygen. Her chest x-ray showed an acute infection in her lower lungs. We were able to leave the following Saturday evening. It was a short visit but traumatic even so. She is doing well now and is back to her old self...crazy hair and all.

Currently we are working on finding out why she has blood in her "poo." I dislike every word that you could use for that so I will use the word poo :) We just took a sample to the hospital today. We should know in a couple of days what they find. I will try to keep this updated! That is my goal.

SNOW DAY!!!

2009-01-28T08:37:00.000-08:00

Here is what we did today on our snow day! We stayed in our PJs and played inside where is was warm and cozy!

2009-01-28T08:20:00.001-08:00

Here are some fun photos from Austin's Cougar Classic!

Medical Update

2009-01-19T05:30:00.000-08:00

Addison is doing pretty well. Right now she has been sick for about a week. She is very congested and tired. No major worries right now...just sick. She is still on her oxygen at night until we can get her through the RSV season and then we will reevaluate the o2 after a sleep study is done. That won't be until after April.
She just had tubes put in on December 2nd. Because her ear canals are so very tiny it took the Dr. over 2 hours for this procedure. He ended up getting a tube into her right ear. Her ears are looking good and we haven't had any problems yet. Her next step is to see the hearing aide clinic at Riley and have another hearing test.
There hasn't been any talk of fixing her cleft palate. She uses the hole in her mouth as an airway since her airways are so tiny. She needs that space until her chin, throat, etc grow a little more.
She is still being fed by her G-tube. She eats very small amounts of baby food but doesn't really like it! She does however put everything else in her mouth.
Right now we couldn't ask for things to be any better. She is growing and becoming more personable and fun!!! She is hilarious...and cute as a button!

Chrstmas 2008

2009-01-19T05:16:00.000-08:00

We had a great Christmas. We had fun with the family and Addison stayed awake for Santa's visit! Santa brought Addison a great toy that she can use sitting down or standing up! Santa brought the boys a PING PONG table! What fun!!! Here are some more pictures for your enjoyment! We hope that all of you had a great holiday season and happy new year!

Christmas pics

2009-01-19T05:13:00.000-08:00

Amanda Bannon takes the best pictures! She made us all look fabulous in our Christmas pictures! Here are just a couple that she took. Addison was so funny and happy that day! Hope you enjoy!

Andrew, Luke, Jackson and I at the Pumpkin Patch

2008-11-11T05:04:00.001-08:00

Addison's first Halloween!

2008-11-11T05:02:00.000-08:00

Addison was in the hospital having surgery last year on Halloween. This was the first year she has gone trick-or-treating! Let me tell you how excited I was! The weather was wonderful and she looked beautiful as a ladybug! Here are a few pictures including ones from last year in the hospital!

This year at the Pumpkin Patch

2008-11-11T04:57:00.001-08:00

Last year at this time!

2008-11-11T04:39:00.001-08:00

This picture was taken last year (07) around Halloween. Look at the difference in how much she has grown and changed!

Doctor Updates

2008-11-02T13:20:00.000-08:00

Wow! It's been awhile since I have updated Addison's blog! Addison has been to many of her doctors lately so let's see if I give you some updates! The biggest question is when will they fix her cleft palate...since Addison has issues with her breathing and is still on oxygen at night the pulmonologist and plastic surgeon agree that waiting for awhile is best. Addison is taking advantage of the hole in her mouth and using it as an airway. Since her chin is somewhat pushed back this pushes her tongue back and has made her airways in her throat smaller. So for now we agree with the doctors and find waiting the best for Addison.

Addison has also seen her neurosurgeon and he said that there is now clear evidence to show that she actually has a tethered cord! This was good news. We are going back to see him in 9 months. We will just touch base and make sure that she is still having movement in her legs and no bowel issues (that's hard to determine since she isn't potty trained). We were glad to hear his news!

The developmental and GI doctors said she is growing wonderfully! She is moving to Pediasure soon and will have her diet altered to fit her calorie needs, etc. She is constantly rolling over, almost sitting up by herself and working on her leg bearing activities. She is advancing nicely!

We are looking at possible tubes near December. I think I can handle that! It is such a common surgery. I just hate to see her have surgery again! But then she will be able to hear her mother's lovely voice singing her ladybug songs!!!

Birthday Pictures

2008-09-11T16:57:00.000-07:00

Here are some birthday party pictures!

Random Updates

2008-09-09T16:56:00.000-07:00

It has been awhile since I have updated news on Addison. Since I started the school year in August I haven't found the time to sit down and add news or pics. I might get excited and add too much today :) On August 30 Addison celebrated her first birthday! We went to Holiday World with my parents for Labor Day weekend. We had a great time. Addison bonded with my mom as we went on the roller coasters time and time again. She did very well considering the heat that weekend. On September 6th we had her birthday party and of course it was all about the ladybugs! We had a wonderful cake decorator...thanks aunt pam...make an awesome ladybug cake. She has been all smiles the last couple of days so she was in a great mood. I have tired to post a variety of pictures. Hopefully not too many...can there ever be too many pics of my beautiful daughter??

This past Monday Addison went to the pulmonologist for a follow up. She is breathing nicely. The oxygen at night is still needed until a sleep study is done to determine her o2 levels. On Friday she goes to see the G-tube nurse and Opthamology, Tuesday is the ENT, the following Monday is Plastics and Neurosurgery. Lots of stuff going on....

Orthopedics

2008-08-20T15:12:00.000-07:00

Addison went to her Orthopedics doctor for the first time yesterday. Awhile back we received some news that her forearms were not developed correctly. The x-rays showed dislocation around her elbows of both arms. The doctor said that she has 70% range of motion. She will probably not have to have surgery (which is very indepth and difficult) since she would not benefit from it. She goes back to orthopedics in February for more x-rays.

Care for Addison

2008-08-16T09:42:00.000-07:00

Many of you have been asking about who is watching Addison since I have gone back to work. Sean's employers have been very gracious in allowing Sean to work nights for a couple of weeks so he could stay home with Addison. It has worked out well for now. Starting in September Sean has to go back to days. Grandma Mary is going to watch Addison during the day for awhile. Addison's care is the most important thing right now so are taking each day one at a time! Here is a picture of Daddy leaving for work on his first night!

Back to work!

2008-07-29T11:41:00.000-07:00

So... I returned back to work yesterday to teach Camp Kindergarten. It is so fun...however, I missed my baby girl so much. Addison stayed with Meemaw and had a blast. They practiced rolling over some more. She loves to sit in her big girl high chair and watch Meemaw fold all of Mommy's clothes....I love you Meemaw!

Baseball

2008-07-24T14:32:00.000-07:00

Addison made it through her first Greensburg Baseball Tourney. She was even given the game ball. One sweet little guy who has a heart of gold for Addison decided that if the team won then Addison should get the game ball. They did in fact win and moved on to the Semi-finals only to get rained out! Addison loved her ball that the team/coaches signed. We will be getting a special baseball stand for the ball that will be kept in Addison's room. You can see how much she loves it...always licking the things she loves!

2008-07-24T14:20:00.001-07:00

Here is a picture of her rolling over!

YEAH!

2008-07-24T14:13:00.000-07:00

This afternoon Addison rolled over on her own! It was so cute. We have worked very hard in therapy on rolling over and sitting up. I truly thought that she was never going to be comfortable on her belly. It isn't her most favorite place however she finally got bored enough on her back that she decided to venture out!

We also found out the results of her xrays of her elbows. The nurse called and simply said "they are funky." Her ulna and radius are mishapen or under developed. They call this hypoplastic (I think that is the right word). She is being refered to Orthopedics. Just a small bump in the road. Sean said it is better to know now that later...he is so postive. He is our rock!

2008-07-22T16:46:00.000-07:00

Addison went to the Neurosurgeon on Wednesday of last week. She is doing well and will the doctor again in a couple of months as well as her plastic surgeon (in anticipation of repairing her cleft palate).
Today we took Addi to the pediatrician. She has a slight weez and is on her nebulizer treatments 3 times a day.

2008-07-15T11:16:00.000-07:00

Today Addison had a visit with her Developmental Doctors. If you can believe this...she is gaining too much weight. Here we have always been concerned about her growing and now she is growing too fast :) She had x-rays on her elbows to determine if they are tight or if they aren't developed properly. We also made an appt with an ENT for her ears/hearing. Yesterday we went and saw her pulmonologist. She is now on her oxygen at night only. She will have another sleep study later on to find out more about her sleep patterns and oxygen levels during sleepy time. Tomorrow we go to see Neurosurgery. We have had a busy week already.

2008-07-03T10:09:00.001-07:00